Both Kruz and Paizlee Davenport were diagnosed with Schimke Immuno-Osseous Dysplasia (SIOD). This is an extremely rare form of dwarfism. In order for them to have this disease, both parents had to carry a recessive gene called a SMARCAL1 gene. It was a 1-in-3 million chance that both parents would carry this gene and another 25% chance they would have a child with this disease. This made Kruz and Paizlee the “number 5”and "number 6" documented cases in the USA. There are under 50 known cases of this disease worldwide.
The doctors conducting the research for SIOD have cloned another SIOD patient’s genes and believe the drug Ataluren could bypass the gene mutation for children with Schimke. This 3-million-dollar research offers BIG promises and could prolong their life and other SIOD patients’ lives.
Although life expectancy is 9 to 11 years old, the family is optimistic! The Davenport’s are ready to see this through with an aggressive fight to prolong life for their children. Please find it in your hearts to donate towards getting research funded!
They HOPE and BELIEVE that through GOD and your help, they can be the change!
#kruznforakure #paizleespurpose #SIODsiblings